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Why the End of Life Choice Act is being reviewed
The End of Life Choice Act 2019 is the law that makes assisted dying legal in New Zealand. The Act came into force on 7 November 2021, following a public referendum held alongside the 2020 General Election. The Act is administered by the Ministry of Health.
Under the legislation, the Ministry of Health must undertake a review of the operation of the Act within 3 years of it coming into force, and every 5 years after that.
The review is currently underway and will conclude in November 2024.
Terms of reference
The terms of reference for the review set out the scope and approach for how it will be carried out.
- Terms of Reference for the Review of the End of Life Choice Act 2019 (Word, 32 KB)
- Terms of Reference for the Review of the End of Life Choice Act 2019 (PDF, 75 KB)
How the review is taking place
The review of the End of Life Choice Act has 2 parts:
- a review of the operation of the Act by the Ministry of Health
- an online process to gather public opinion about changes that could be made to the Act.
Reviewing the operation of the Act
The review of the operation of the End of Life Choice Act considers whether the legislation is operating well and achieving its intended purposes.
The Ministry of Health will consider whether changes are needed to address:
- the meaning and interpretation of rules or settings in the Act
- the effectiveness of mechanisms in the Act, such as those intended to support access and provide safeguards
- how the Act supports the administration of assisted dying
- the roles and responsibilities of those involved
- alignment of the Act with other pieces of legislation and the wider health system.
This part of the review focuses on how well the Act is working currently, rather than changes to the intent of the Act. For this reason, it will be informed by targeted engagement with relevant stakeholders.
Stakeholders include groups or individuals who:
- have a role under the Act
- are involved in providing assisted dying services
- have particular knowledge or expertise related to the Act.
We will be in touch with these groups as part of the review process.
Public consultation
Public consultation for feedback on the End of Life Choice Act took place from 1 August to 26 September 2024. It is now closed.
Public feedback will be summarised in a report, which will be provided to the Minister of Health.
What happens once the review is complete
The review concludes in November 2024. When it is complete, the Ministry of Health will provide the Minister of Health with:
- a report with findings from the review of the operation of the Act, and recommended changes to the Act
- a summary of public feedback on the Act.
The Minister of Health will then table these reports in Parliament. Government parties have agreed that any changes to the Act will be proposed through members’ bills.
Frequently asked questions
Why is the End of Life Choice Act being reviewed?
Under the legislation, the Ministry of Health must undertake a review of the operation of the Act within 3 years of it coming into force, and every 5 years after that. The Act came into force on 7 November 2021, which means that a review must conclude in November 2024.
What is in scope of the review?
There are 2 streams to the review: the review of the operation of the Act, and an online process to gather public opinion on the Act.
The review of the operation of the Act will consider how well the Act is currently operating and achieving its purposes. As part of that, the Ministry of Health will consider whether changes are needed to address:
- the meaning and interpretation of rules or settings in the Act
- the effectiveness of mechanisms in the Act, such as those intended to support access and provide safeguards
- how the Act supports the administration of assisted dying
- the roles and responsibilities of those involved
- alignment of the Act with other pieces of legislation and the wider health system.
The review will not consider changes that would go beyond the purposes and intent of the current Act, such as changes to eligibility settings or providing for the use of advanced directives.
The online process will capture public opinion on any aspect of the Act, including matters that go beyond the operation of the Act.
Why is the review being undertaken in 2 parts?
Each of the 2 processes has a different focus:
- The review of the operation of the Act will draw on input from relevant experts and those with direct experience of the service, to provide advice to Ministers on where areas of the current Act may be improved.
- The online process is an opportunity for the public to provide their views on any aspect related to the Act. These views will then be summarised and provided alongside the advice from the Ministry of Health.
This approach provides for the review of the operation of the Act required by legislation, and for the public to express views that may go beyond the operation of the Act.
Who is carrying out the review?
The Ministry of Health is carrying out the review. We are the agency responsible for the End of Life Choice Act.
When will the review be finished?
The review will be completed in November 2024.
What will happen with public feedback?
The feedback received through the online portal will be collated into a report, which will be provided to the Minister of Health. The Minister will table this report in Parliament.
Parties in Parliament can consider this report alongside the report on the operation of the Act, and determine whether to introduce members’ bills to amend the Act.
Will public feedback be considered in the review of the operation of the Act?
No. That work will be informed by targeted engagement with groups or individuals who have a role under the Act, who are involved in providing assisted dying services, or who have particular knowledge or expertise related to the Act.
Any changes to the Act will need to be proposed through members’ bills. This means that any proposed changes will be subject to the full parliamentary process, which includes opportunities for public input at select committee.
Will the online portal be accessible?
Providing feedback through an online channel is a common practice in New Zealand, such as for people seeking to provide submissions to select committees. We will ensure that the portal complies with accessibility standards.