Aotearoa New Zealand Rare Disorders Strategy 2024 – 2034: Implementation Plan 2026–27

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The Implementation Plan informs the public about the actions health agencies are taking in 2026–27 towards the vision and outcomes of the Aotearoa New Zealand Rare Disorders Strategy 2024–2034.

The Plan supports achieving the vision of the Strategy that: 

All people and their whānau living with rare disorders share in pae ora (healthy futures) and live fulfilling lives.

This vision will have been achieved when:

• people and their whānau living with a rare disorder have a better quality of life
• the health system is responsive to people whose needs or situation are uncommon, unusual or unclear
• designing, commissioning or providing new policies or services routinely consider the needs of people with rare disorders.

Actions are listed under the five priorities in the Strategy:

• gearing the system for quality and timely care    
• learning and sustaining progress 
• equipping the health workforce for quality rare disorders care
• giving voice to people and their whānau living with rare disorders      
• joining up internationally to achieve more.