Aotearoa New Zealand Rare Disorders Strategy Te Rautaki o Aotearoa e Pā ana ki ngā Mate Mokorea

Summary

The Aotearoa New Zealand Rare Disorders Strategy sets out the direction for the health system to better support people and their whānau living with rare disorders. It provides a framework and long-term priorities that will guide health entities in improving health and wellbeing outcomes for people and their whānau with rare disorders over the decade 2024 to 2034.

We have heard from people and their whānau living with rare disorders that they often face significant barriers to getting timely, effective and equitable health care. Practitioners may find it difficult to diagnose rare disorders or may not know how to support their health and wellbeing.

The strategy will improve system responsiveness and support for people and their whānau living with rare disorders, as well as service providers who often face difficulties meeting patient needs.

Our vision is for all people and their whānau living with rare disorders to share in pae ora (healthy futures) and live fulfilling lives.

Supporting publications

Rare voices and aspirations - This supporting document to the Aotearoa New Zealand Rare Disorders Strategy outlines how we achieved the Strategy with support from a broad range of expertise across the health and other sectors.

Context and evidence - This supporting document to the Aotearoa New Zealand Rare Disorders Strategy outlines the context in which the Strategy was developed and will operate, along with evidence used in developing it.