Consumer consortium

The consumer consortium involves people representing national disability organisations who provide input and advice to Disability Support Services on its planning, policy and service development.

Background

Disability Support Services want to involve disabled people in making decisions about Ministry of Health funded disability support services. The consortium provides a link between Disability Support Services and the people who use the services funded by Disability Support Services.

The Consortium meets 6-monthly and meeting agendas may include:

  • updates on Disability Support Services’ projects and activities
  • presentations from other government departments, eg, Ministry of Social Development, Ministry of Education
  • requests for the Consortium’s advice on:
    • development of DSS Strategic and Annual Plans and updates on implementation of these
    • project implementation, eg, New Model, Enabling Good Lives
    • issues of concern to the disability sector, prioritisation of these, and how these could be addressed
    • policy development
    • service quality
    • service gaps
    • improving collaboration between government agencies, between consumer organisations, and between government agencies and consumer organisations.

Membership

Disabled people and/or family or whānau representatives make up the consortium. Members are from disability organisations with:

  • national membership, largely consisting of people with disabilities using Ministry of Health funded disability support services, and
  • a mandate to represent the views of, and provide information and advice to, people with disabilities Ministry of Health funded disability support services.

Consumer Consortium members are selected by the following organisations and serve a 4-year term of membership.

Consumer Consortium Member Organisations Membership
Royal New Zealand Foundation of the Blind 1 person with a disability
NZ Association of Blind Citizens 1 person with a disability
NZ Hearing Association 1 person with a disability
Autism NZ 1 person with a disability and a family member
Ngati Kapo NZ 1 person with a disability
People First NZ 2 people with disabilities
Deaf Aotearoa NZ 2 people with a disability
Mana Turi o Aotearoa 1 person with a disability
Brain Injury Association 1 person with an acquired brain injury and 1 family member
Parent to Parent NZ 2 family members
Carers NZ 1 family member
IHC Advocacy 1 family member
CCS Disability Action 1 person with a disability and a family member
Cerebral Palsy Society 1 person with a disability and a family member
PIASS Trust 2 people with disabilities
DPA NZ 1 person with a disability
Rescare NZ 1 family member
Deaf Blind NZ Incorporated 1 person with a disability
Muscular Dystrophy Association 1 person with a disability
Down Syndrome Association 1 person with a disability and a family member

For more information on the Consumer Consortium, contact Cheryll Graham, Senior Advisor at Cheryll_Graham@moh.govt.nz.

Meeting summaries

Disability Consumer Consortium Meeting 6-8 April 2016

The agenda was full and included presentations on: DSS Demographic Report; Putting People First; Health of Older People; Update on Whâia te Ao Mârama, the Mâori Disability Action Plan; Physical health of people with intellectual/learning disabilities; Equipment and Modification Services Prioritisation Tool; Revision of the NZ Disability Strategy; the Intellectual Disability (Compulsory Care and Rehabilitation) Act 2003; Child Development Services; Local Area Coordination in the Hutt Valley; Choice in Community Living; Enabling Good Lives Waikato Demonstration update; Update on the Healthy Families programme; Update on changes to the Purchasing Guidelines.

A Guide to Community Engagement with People with Disabilities was launched at the meeting. This guide was developed by the Ministry in close consultation with disabled people’s organisations and provides practical advice to anyone wanting to engage with people with disabilities. The purpose of the guide is to break down some of the barriers disabled people face, so that we can all benefit from the full participation of disabled people in New Zealand society.

The guide has been published in electronic form only and is available on the Ministry of Health website.

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