Data standards for personal health information
HISO has assessed the Patient Summary Standards Set (PSSS) as a source of standards for personal health information and the future national Health Information Platform (nHIP). HISO 10078 is the following statement.
In 2017/18, the national electronic health record indicative business project documented information needs and gaps under a set of headings: demographics, allergies, flags, immunisations, medical history, medications, social/environmental and diagnostics. This extended to the care plan and transfer of care, as well as consumer-generated information. Requirements were explored for a number of personas with different health care needs. See the attached poster: Core Personal Heallth Information: Draft data requirements for the national Health Information Platform (nHIP) - September 2019 (PDF, 113 KB).
The PSSS is a guide to a set of coherent standards and related materials for core personal health information and an interoperable patient summary. It was published in 2018 by the Joint Initiative Council for Global Health Informatics Standardisation (JIC). The JIC is a collaboration between ISO/TC 215, HL7 International, SNOMED International and GS1, among other standards development organisations we recognise. JIC’s stated purpose is to contribute to better patient outcomes by leading the specification of sets of implementable standards for health information sharing.
The PSSS includes a data set specification and related standards covering patient identification and demographics, allergies, alerts, vaccinations, problems and health issues, procedures, medicines, smoking/alcohol/diet, diagnostics and vitals, functioning and pregnancy. The PSSS is designed for use cases in acute and unplanned care, with a focus on patients with long term conditions.
Within this scope, the PSSS is a suitable reference and starting point for personal health information and nHIP. Using PSSS where possible will save us effort and ensure we have a coherent approach to the standards we apply, in a way that we can reasonably expect our industry partners to support.
PSSS does not address the scope of requirements related to care plan, transfer of care and consumer-generated data. Subjective personal information that shapes the whole patient journey across multiple services and providers, including the influential social factors of 'who I am' as a patient and consumer, is also not within scope for PSSS. These requirements need different reference points and it will be essential to consider all their aspects when developing standards.
See also our commentary on the new US regulations for interoperability and patient access.